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It's important to be comfy when you're sleeping away from home. Which apparently means burying yourself in pillows if you're my friend Daniel.

When I travel, I gotta sleep. There’s no way around it. No matter how many things I want to see, no matter what I want to do, if I don’t get plenty of sleep every single night I might as well stay home.

So I think about sleeping when I plan my trips. When? For how long? On what? Under what? Sleep is a many splendored thing–I need to be comfortable, which means I need to plan pretty carefully.

Dark and Quiet

I need moderate dark and reasonable quiet in order to sleep well.

For me, that means I try to get a room facing away from the street if I’m staying in a big city hotel or highway-facing motor inn.  That helps to keep the noise to a minimum. I also prefer to be about midway down the hallway from the elevator in multi-story accommodations. I like to be able to walk to my room easily, but I don’t love hearing the elevator clank and clang and beep all night.

I always wear earplugs when I sleep, so I don’t need absolute silence in my room.

Lightwise, I want to be able to draw curtains to shut out morning light. Whenever possible, I avoid east-facing rooms. Sunrise and I are not buddies. But I don’t love blackout curtains–they mess up my internal clock. If I get them in my motel room (and if I’m staying in Reno or Vegas, it’s nigh on impossible to avoid them), I make sure not to close them all the way.

Soft and Warm

Unless I’ve got no other choice, I prefer a room with some flavor of central heating rather than a portable space heater. One (often overly) warm spot in an ice-cold room does not work for  me, as I routinely get up more than once per night to use the bathroom.

“Soft” mostly means that I prefer a bed with a newer or specialized mattress. My preference is Tempur-Pedic(tm), but I can’t often afford the kind of room that boasts a top-end bed. Every now and again if I splurge I can afford something with a Sleep Number(tm), which is nice because my husband has different mattress preferences.

What doesn’t work so well for me are the slabs of plywood or concrete that masquerade as mattresses in down-rent Motel 6es and the like. So either I suck it up and budget for a nice enough room to guarantee a decent bed, or I drag my own mattress pad along. (Obviously this is a road-trip strategy.) I’ve got a queen-sized foam mattress pad that comes traveling with me when necessary.

Same goes for blankets–ultra-cheap motels often don’t have heavy enough covers for me, especially in winter. So I bring my own.

My Weary Head

BYO pillow if you want a good night’s sleep on the road. Accept no substitutes.

(I often sleep on hotel pillows so that I can bring their relative comfort to you, my readers. But not at cheap motels anymore. ‘Cause ow.)

Drugs and Other Sleep Aids

Are my friend. Whether I’m currently using melatonin or zolpidem, I bring a trip-long supply and use it regularly. On the road is not the time or place to decide that chemical sleep aids are evil and must be deleted from my repertoire.

Though I don’t use such things, same goes for music, sound generators, TV, aromatherapy, or whatever else you use to help you sleep at home. Bring it with you on your trip to make sure that your sleep environment is as close to what you’ve got at home as you can manage.

Long and Deep

I need to sleep at least 10 hours each night–12 is better when I’m traveling. Yeah, that’s a lot of sleep. That means I’ve either got to go to bed early and forgo whatever night life my destination has to offer, or I’ve got to sleep late in the mornings.

Because I am *ahem* not a morning person, I usually choose to sleep in. This means that I miss things. If you want to see Haleakala without a coating of dense fog, you pretty much have to see it at sunrise. So usually on each major trip I take, if there are cool things to do and see that must be done in the early morning, I’ll pick precisely one of them. I’ll choose one morning to get up early and play, and I’ll suck up the hit to my body and mind.

This can be a bummer sometimes. But if I try to push this limit and do two or three early mornings in one trip, the price I pay gets too high (like I won’t be able to function any more for the duration of the drip and for several days after getting home).

On the other hand, if I pack and plan well, stick to my boundaries, and get that good sleep, I often find that I’m able to do and see more than I might have imagined. Which is just so cool!

pajama jeansLast week, on a marathon shopping trip to Bed Bath & Beyond, I saw a display of Pajama Jeans. I’ve been meaning to try the silly things out for a while so I could write about it here.

So without further ado–the Travels With Pain review of Pajama Jeans!

Material

The fabric of the Pajama Jeans really wasn’t what I was expecting. It’s stiff–more jeans-like and less pajamalike than I’d envisioned. I definitely couldn’t and wouldn’t sleep in these by choice. On the other hand, they’re soft and stretchy enough to wear on a plane trip or a road trip.

The box claims that the fabric is something new and special called Dormisoft(tm). The inner tag claims that Pajama Jeans are 95% cotton and 5% spandex. Whoopee.

Fit

I like the fit of the Pajama Jeans, for the most part. I bought a Small based on the size of my waist (which I am not publishing here–so there). They fit true to size, though I find them to be fairly tight through the thighs and rear. They definitely gave my behind a nice-looking lift, the way a good pair of women’s jeans is supposed to.

On the other hand, the waist is stretchy and does not dig in when I sit down and when I contort into funny positions to try to get them to dig.

Style

I’m not in love with the Pajama Jeans style. The stitching at the waist looks kinda funky–more like pajamas than like jeans. Which makes me hesitant to wear these pants to work or out and about on a travel day. I might wear them with a long sweater or tunic-style top, but not with any top I’d tuck in or as part of an outfit that would show off the funky-looking waistband.

Pajama Jeans don’t have front pockets. I know that this is a current fashion trend in women’s jeans, but it drives me up a tree. I need those pockets. Especially when I’m traveling–I put things in those pockets, darn it!

After an Hour

After an hour of wearing the Pajama Jeans, I was ready to shed them and get back into my yoga pants.

The Bottom Line

Pajama Jeans = Meh

I’ll wear them again, and I do think they’ll make decent travel pants. I probably won’t wear them to work. I certainly will not wear them to bed as jammies if I’ve got any other options. I probably won’t buy another pair until/unless they make some styling changes.

 

Photo (c) Pajama Jeans(tm)
Poipu Kauai

This is what Kauai looks like in January, June, and November. Ya gotta love it.

As the temperatures in my hometown plummet to 32 F (0 C)–brrr!–I find myself thinking about different ways to keep warm when I travel. Yes, I’m from California and I get cold when it’s 62 F.

But the real problem is that when I get cold, my pain gets worse. So I’ve got to stay warm when I’m on the road or things can go very bad for me.

Here’s how I stay warm when I travel:

Visit Warm Places

The easiest way to keep from getting cold on the road is to travel to places that aren’t cold. My own state, California, has some great moderate-temp destinations that rarely get down to freezing even in the depths of February. Granted, wintertime is not bikini-time, even in San Diego. But San Diego, Palm Springs, Death Valley, Disneyland, and even San Francisco don’t get truly cold at any time–no snow, no below-zero wind chill, never even a hard frost most years. Other U.S. states with warm winter weather are Arizona, New Mexico, parts of Texas, and ever-popular Florida.

I favor Hawaii and the isles of the South Pacific as warm winter destinations. Maui is gorgeous in March. The Caribbean hurricane season ends at the first of December, which makes the balmy chain of islands a wonderful  winter holiday destination. Cruise ships ply the Caribbean waters all winter long, making the most of the bathtub-temperature waters and sugar-sand beaches. Last February I went snorkeling in Cozumel wearing only a one-piece and a mask, and felt perfectly comfortable.

For travelers with more endurance for long flights and adventurous spirits when it comes to international destinations, other ways to keep warm include prowling the equatorial regions where the Earth stays warm year round, or swapping hemispheres for a season. While we’re snow-skiing North America from December through March, Australia and New Zealand are enjoying fine hot summers. And along the equator in South America, Southeast Asia, and Africa the tropical rain forests remain hot and damp even in the darkest months of winter.

Pack and Wear Layers

Liz Hamill Lake Tahoe

My cute husband doesn't have chronic pain. He can go out in below-freezing weather and stand in a snowbank wearing a windbreaker and no hat. Me, not so much.

Forget about packing ultra-light, baggage-free travel, and all that crap. If I’m going someplace cold, I’m darn well going to bring enough clothing to keep me warm day and night.

That means  turtlenecks, tank tops, long johns, and flannel jammies. Whatever pretty and warm sweaters, and attractive jeans and pants I want to wear over the sturdy under-layers. Plus sturdy fuzzy boots, long wool coat (or a ski jacket), wool scarf, warm hat, and warm gloves for time outdoors. Oh, and warm socks! Lots and lots of warm, comfy socks.

Use Heat Patches, Heat Pouches, & Heating Pads

These days, all sorts of heat patches and pouches are sold at my local Walgreens. So are electric heating pads, come to think of it. All of these work great on road trips–you can even get an adapter for your heating pad and plug it into your car. (When the car’s running–heating pads suck up tons of electricity, so don’t drain your car battery with your hot pad unless it’s really an emergency.)

While you can get the kind of heat pouches that have gel in them through airport security in the US by declaring them to be “medically necessary,” they may prove to be more trouble than they’re worth. And heating pads have wires in them, so I never bother trying to carry mine on board an airplane. That pretty much leaves the hot patches for plane flights. ThermaCare makes a nice one.

Turn Up the Heater

In the car and in my motel room, I turn the heater up to a temperature that truly keeps me comfortable. A trip in a cold winter environment is not the time nor the place to be parsimonious with the thermostat. If I’m feeling chilled when I get into my room, I will crank the temp up to 78 if I need to.

Drive Rather Than Taking Public Transit

It’s not green. It’s not PC. But it’s much, much warmer when I drive myself rather than taking public transit. Driving myself means no waiting outside in the cold at bus stations, light rail stations, or train stations. No standing on windswept corners trying to hail a cab. No sitting in an icy draft on a molded plastic seat. No long freezing hikes from the bus station to wherever it is I’m actually trying to go.

Of course, parking lots can be a long, long walk from the front door of my destination. But it’s more likely that I’ll have less walking to do if I drive rather than dealing with transit.

Take Lots of Hot Baths and Showers

Even the worst chills can be soaked away in a long hot bath. In-room spa tubs become even more important to me in the winter. For me, a shower works in a pinch but a deep tub that lets me submerge up to my neck works best. These days, many nice inns and hotels provide bath salts. But I can always bring a ziplock bag of my own blend of healing salts to throw in the water.

Fire Up the Fireplace

If my home away from home has a fireplace, I light it up and enjoy the warmth, the gentle light, and a good book.

 

So what do you do to keep warm when you travel? I’d love to gather up some more tips!

Half Moon Bay California

View of Half Moon Bay from the Ritz-Carlton, where I would one day like to be wealthy enough to patronize for my overnight getaways

Last week, my husband and I went and spent a night in the charming little seaside town of Half Moon Bay, California at the ocean-front Cypress Inn.

This little vacation is exactly the kind of trip I think is perfect for chronic pain patients who haven’t done a lot of traveling with their pain yet, who are celebrating the diminishing of a flare, or who feel like they might be doing well enough to travel. At the moment I’m in category 2.

If you’ve got chronic pain and you can physically get up out of bed and walk around your house, and you can tolerate a car trip of 15-60 minutes, you can take this kind of trip. It may not be pain-free. But if you want to have fun, you can create a lot of fun.

Here’s my step-by-step guide to finding the joy in a one-night near-home getaway:

  1. Choose someplace near home.
    I love Half Moon Bay because it’s less than an hour’s drive from my house, yet it’s got a totally different atmosphere than the one I live in. It’s got a small town feel, complete with kitschy downtown, and it lies along the stunning Northern California coastline. Read here: Beach!I also like taking getaways to the woods, to the mountains, and to small towns with interesting history. I always try to pick someplace with points of interest, places to take slow pleasant walks, unusual or chic restaurants, and a nice inn that’s got comfortable rooms near to the places I want to visit.
  2. Drive out in the mid-afternoon.
    Midafternoon is the perfect time to make my short drive up the freeway and over the mountains. Between 1pm and 3pm, traffic in my major metro area smooths out. Most every hotel, motel, and inn known to man has a check-in time between 3pm-4pm. I timed my drive to get to the Cypress Inn just at check-in time, so I could lie down if I felt tired or achy when I arrived.
  3. Take a walk on the beach.
    I didn’t feel tired or achy, so my husband unloaded our bags into our room, we changed our shoes, and we headed out. The Cypress Inn sits just across the road from the beach. We took a long, shambling stroll. I collected a few shells, including some undamaged sand dollars. I breathed in the ocean air, stared out over the water, petted various dogs who’d taken their owners out for a romp on the sand, and just let myself feel the joy of being someplace beautiful…someplace different.
  4. Rest.
    After beachcombing for an hour, I felt tired. So I laid down on the wide bed and read a book for an hour. My husband and I watched the sun set over the Pacific from the wide windows overlooking the water.
  5. Go out for a nice dinner.
    Before we left home, I’d made reservations at Cetrella–a fancy California cuisine restaurant in downtown Half Moon Bay. I love dining out, especially when I’m traveling. Cetrella has a special $25 prix-fixe menu they serve Tues-Thurs. We took advantage of that discount and enjoyed a charming meal with a glass of wine. The restaurant is only 10-15 minutes from the Inn, so if I’d had physical trouble we could have gotten me back to the room quickly.Though it wasn’t strictly necessary, my husband and I dressed up some for dinner. I wore dress pants and boots rather than a dress and heels–walking in heels tends to cause me pain, and the cold weather would have added pain if I’d chosen a dress. But it’s still great fun to dress up, add some jewelry and makeup to my outfit. It makes the meal a special event, and that much more fun.
  6. Take a bath.
    Especially in chilly weather, baths ease my aches and pains while relaxing my muscles and soothing my skin. Knowing this, my fabulous husband reserved us a room with an oversized spa tub. We made use of it. ‘Nuff said.
  7. Enjoy the hotel room.
    All through our short stay, I enjoyed the amenities of the room at the Cypress Inn we’d saved up to be able to afford and of the Inn itself. The bathtub, of course, the comfy bed, the wide flat-screen TV with cable, the in-house Esalen-trained massage therapist, the wine and cheese in the evening, the room-service breakfast in the morning.
  8. Sleep.
    I can’t do without lots of sleep each night. So I put in my earplugs, locked the door and put out the Do Not Disturb sign, pulled the drapes, and slept.
  9. Eat breakfast in bed.
    The innkeeper delivers breakfast trays to guests who don’t want to appear in the dining room in the morning. So we enjoyed a leisurely breakfast in bed.
  10. Check out at the latest possible check-0ut time.
    No point in bolting out of the room at 7 am–this was a vacation! So we packed up, husband loaded the car, and we checked out at 11:30 am.
  11. Shop downtown.
    I love shopping, and my husband gamely tolerates shopping. Shopping is another way to get in a stroll while seeing new things. Most downtown areas have benches if I need to sit down, there’s usually someplace that’s selling bottled water and coffee, and being a customer means the sales staff will let me use the restrooms.
  12. Have a light lunch at a cute bakery.
    Eating’s important. So we did.
  13. Drive home.
    In the early afternoon, we drove home. I have a tough time making it through a whole day without lying down to rest at least once in the afternoon. We went home so I could do that.
  14. Rest.
    We got home and I laid down and rested.

Totally successful trip! Try it yourself when you get a chance.

 

Photo (c) radzfoto on flickr

McCarran International Airport Las Vegas

Carousel, Slots, and Show Posters at McCarran International Airport Las Vegas, photo (c) kanamas on flickr

One of the busiest international airports in the Western United States, McCarran International Airport at Las Vegas (LAS) presents unique challenges and interesting diversions to travelers with pain. The big question is–how do you feel about slot machines? ‘Cause McCarran International has more than 1,300 of the jangling, flashing things inside its terminals.

I’ve flown in and out of McCarran a few times in the last few years. Here’s my take on the facilities and services of LAS.

The Basics

McCarran International is an immense sprawling tangle, composed of reasonably sized Terminal 2 and immense Terminal 1. Terminal 1 has four concourses and an esplanade. Trams take passengers from concourse to concourse in Terminal 1, as it’s too far to walk (and Concourse D is detached and heck’n'gone from the rest of the airport).

The whole thing is huge–big enough that it can get hellish to walk from gate to gate, ticketing to security to gate, gate to baggage claim, or baggage claim to parking and ground transport.

Driving In, Ride-In and Parking

McCarran is a good longish drive out from the Strip and central Las Vegas. The good news: because it’s out in BF Nowhere, there’s plenty of parking at and around the airport. The bad news: it can be a long, long walk to ticketing and security from both short-term and long-term parking.

Also, because McCarran is so busy, it can be a hassle to get dropped off by taxi at the departure area. At peak times, you may have to wait or to walk–not a great choice for travelers with pain. And it’s a big ol’ hassle to return a rental car and get to your terminal–the rental car return can be confusing to find if you’re unfamiliar with the airport. So allow extra time for hassles if your flight is at a peak travel time.*

Grade: C-

Wheelchair Service

I heartily recommend getting a wheelchair when flying into or out of McCarran, if you ever have enough pain or fatigue to require a wheelchair at an airport. Or if you’ve got a temporary acute pain condition, such as a broken leg, sprained ankle, or recent knee or hip surgery. It’s too big, too crowded, and too difficult to navigate to try to go it on foot.

My experience with wheelchair service at LAS has been pretty good. They’ve always gotten me a chair within 10-15 minutes of my requesting it, and chairs have been present when I disembark upon flying in.

Wheelchair service is provided free of charge by calling (702) 261-5475 or dialing 5475 on any white courtesy phone. C Gate passengers should call (702) 261-6376 from outside the airport or 6376 from any white courtesy phone.

Grade: B

Getting Through Security

I’ve found the security at McCarran to be pretty forgettable, which means that it’s actually quite good. It’s a big international airport, which means that lines can be nasty-long at peak periods. But even on air travel review sites, where any fault in an airline gets magnified, the LAS TSA gets surprisingly high marks.

Grade: A

McCarran International Airport Las Vegas

The Long Walk in McCarran International Airport Las Vegas, photo (c) stevendepolo on flickr

On the Concourses

It’s the concourses that comprise the nitty-gritty of an any airport. At McCarran, the defining characteristic of the concourses is the plethora of slot machines. For me, the endless parade of flashing, ringing, squalling machines has an up side and a down side. The up side–the cushy upholstered stools, often with backs to them, provide reasonably comfortable alternative seating when I’ve got a long wait, or when I need to stop and rest (if I’ve failed to follow my own advice about the wheelchair).

The down side: Slot machines are loud, the lights flash constantly, and they create mobility hazards in the form of crowds. Hardcore slots players tend not to be terribly courteous towards other human beings when they’re in the zone, which means they don’t move, even if a disabled person is trying to get past them. The slots create an anti-relaxing atmosphere throughout McCarran.

Getting Around

To get from concourse to concourse (or terminal to terminal), take the trams. Don’t think you can walk it–LAS is just too big. Also, Concourse D isn’t actually in Terminal 1–it’s way the heck out across the tarmac. Terminal 2 is out in yet another building (in the opposite direction).

Grade: C-

McCarran International Airport Las Vegas

Seats and Slots at McCarran International Airport Las Vegas, photo (c) inazakira on flickr

Seating

Seating around the gates is US-airport standard, as far as I’ve ever experienced. Lots of molded plastic, some minor-league upholstery. With the stools at the slot machines, there’s more seating available on the concourses than usual.

Grade: C

Food

There’s plenty of food on the concourses in Terminal 1. The best dining is in the C concourse–lucky Southwest Airlines passengers catch a break! But you can grab a bite and a cup of coffee easily enough out at the gates of A, B, and D too. Terminal 2 is another story–if you’re not into Pizza Hut, Burger King, hot dogs, or ice cream you’re SOL.

Grade: C

Bathrooms

Are kinda dirty most of the time, and the distribution of bathrooms in some of the concourses is just weird. The worst concourse is A, which has only one set of bathrooms for all the gates. Best is C, which has bathrooms ranging all down its length.

McCarren has unisex restrooms for folks who need assistance, but they’re not numerous.

Grade: D

Other Amenities

There are “recharge stations” sprinkled conservatively throughout the concourses, but I didn’t see any seating with outlets easily available to plug in electronics.

McCarran has free wi-fi.

Grade: B

Baggage Claim

Baggage claim at McCarran involves many carousels, like any large international airport. It’s a long, long walk from most of the gates to baggage claim, so after one regrettably painful incident, I stick with wheelchair service from the gate after my flights.

Baggage claim at LAS seems organized enough, and I’ve not heard or read of any major complaints.

Grade: B-

Ground Transport

Ground transport after a flight into McCarran can be a total zoo. There’s no dedicated public transit system from McCarran into downtown Las Vegas or The Strip, which means visitors have a choice of shuttles, taxis, limos (this is Vegas, after all) or rental cars. Check before you go to see whether your casino, hotel, motel, or timeshare has a free (or pay) airport shuttle. Not all of them do. If you’re coming in on a Friday afternoon or evening, expect to spend at least 15 minutes in the taxi line.

Traffic on The Strip is insane. Expect to get caught in some sort of gawdawful traffic jam that extends your time from LAS to your hotel by at least 15 minutes, no matter what time of day you arrive, no matter what ground transport method you pick. It’s worst if you drive yourself, which I do not recommend for a traveler with pain.

Grade: D

The Bottom Line

I dislike flying into and out of LAS, and find its facilities to be mediocre at best. Here’s hoping that the new terminal they’re opening in 2013 has more bathrooms, better gate seating, better food, and shorter walks.

Grade: C

Listening to the Impossibles.

via Listening to the Impossibles.

 

Think you can’t travel because of your chronic pain, your hidden disability?

Read this post.

It describes, pretty succinctly, why people with chronic pain can travel if they really want to. Traveling with pain isn’t easy. Getting up the money, the courage, and the strength to do it is even harder.

But it’s worth it. Always.

 

I write a lot about how to travel with chronic pain. But what about the opposite–what shouldn’t you do when you travel with chronic pain or a hidden disability? How have I screwed up my trips in the past? Which screw-ups have caused major pain flares, debilitating exhaustion, or a post-trip crash that was worse than expected?

Oh, where to begin? I think I could come up with 100 ways I’ve messed up over the years. But to begin, here are 10 major screw-ups that could seriously mess up a traveler with pain. How do I know? I’ve committed most of them. Learn from my mistakes…don’t do any of this stuff, and enjoy happier, healthier, comfier journeys.

  1. Be spontaneous! Decide to take a weekend getaway…on Friday afternoon.
    Spontaneity is great when it means picking up flowers for my sweetie on the way home from work one night. For traveling with pain–not so much. Spontaneous travel means no time to research anything at my destination, no time to prep my meds, little time to pack properly, and no way to relax or prepare myself physically for the rigors of travel.
  2. Don’t research the destination.
    Going someplace I know nothing about sounds romantic and exciting and adventurous, right? Yeah, right up until I find out at my arrival airport that my medication is illegal in the country I’d tried to visit and I ended up right back on the plane home, or stuck in a tiny windowless room answering questions for hours, or in a foreign jail.
    No, this one has never happened to me. But it’s an example of something that could really happen to a traveler with  pain who didn’t do her research on her destination.
  3. Plan out every minute of every day of your trip.
    Now this one I’ve done. I’m most guilty of it on business trips. I plan to spend whole days in sessions, attending lectures, and walking exhibition halls at conferences. And after about one day of trying to be “up and at ‘em” all day long, my concentration tanks, my pain revs up, and if I keep it up, I end up collapsed on a floor in an incoherent heap. Usually in some embarrassingly public place.
  4. Travel like a  healthy, broke 19-year-old boy.
    That is, pack a big ol’ camping backpack full of gear,  budget $25/day for lodgings, refuse to book any motel rooms so as to “stay flexible,” don’t carry any food or plan for any prescription refills, eschew phrase books, and end up “sleeping” in third-rate hostels or on train station benches half the time. Oh, and be sure to stay up all night clubbing and drinking as often as possible.

    I’d be dead within a week, no matter how many aggro travel writers claim that this is the only true way to experience the world.

  5. Get up early whether it feels good or it hurts like hell.
    My family has a lot of morning people in it. These people expect everyone traveling with them to be out of bed and ready to head out on excursions by  7 a.m. on a daily basis. When I try to keep up, I end up with severe pain flares. My body hates mornings, and doesn’t give a good ******** that Haleakala is prettiest at sunrise.
  6. Stay out late, hanging out at dive bars or crowded clubs.
    On the other hand, I have friends who are major-league night owls. They like to stay up all night dancing to trance music in the woods at Burning Man-style weekend-long parties. I can’t do that any more than I can do the dawn patrol.
  7. Drink too much.
    ‘Cause there’s nothing like alcohol to make an already difficult physical situation better. Especially if the liquor will be blending with multiple medications. Whee!!! *splat*
  8. Don’t use the wheelchair at the airport, even if you need it.
    Pride is important. So is being able to stand up and walk around. My pain requires me to choose between these two important items. The times I’ve chosen pride and walked through airport security, I’ve regretted it. Every single time.
  9. Cut transit timing close.
    I once decided that one hour would be plenty of time to catch a flight at LAX on a holiday Monday. I was right, by a margin of about 5 minutes. They were actually calling my name at the gate and threatening to close the doors by the time I made it out to the concourse. The stress this caused definitely did not diminish my pain.
  10. Fail to keep emergency food and drink close at hand.
    Why carry water and food when traveling? There will always be something on hand at my destination to eat and drink, right? Nope. Not if I arrive at a small town near the Kern River at 9:12 p.m. Even the convenience store in that town closed at 9 p.m. And that’s not even going into that time in Tuscany where the four of us in the travel party had to make dinner out of saltless crackers, apple sauce, powdered Ensure, and a bottle of Limoncello donated to us by a bunch of Aussies who took pity on us.The bright side of that trip to Italy? I lost five pounds.

The Imperfect Traveler's Guide to Traveling With PainLooking for a gift for those people in your life who’s got chronic pain? How about the caregivers and spouses of people with hidden disabilities that make life a little bit harder–conditions like lupus, MS, diabetes, endometriosis, Crohn’s Disease, or cancer.

Get them each a copy of The Imperfect Traveler’s Guide to Traveling With Pain. This slim volume with the friendly letters on the cover can help people with all sorts of hidden disabilities out of their homes and enjoying great vacations. Traveling With Pain, which includes a lot of info that’s not in this blog, can take a new traveler with pain from dreaming of a trip to planning and packing, through the airport and rental car counter, past the hotel reception desk, and out to the beach or the mountain or the lake or the downtown shopping area.

The paperback, which runs only about 100 pages so that it doesn’t weigh a traveler down, costs $16.99.

For Kindle and Nook users, my publisher has a clue and provides a genuine bargain: all the same content for $3.99 (Kindle) and $4.99 (Nook). Younger travelers with pain who use iPads and iPhones can run a Kindle app to read the book. Because it doesn’t have bunches of graphics, it reads fine on handheld devices.

Valuable for years to come, The Imperfect Traveler’s Guide to Traveling With Pain is a gift that keeps on giving. For one thing, it’s filled with useful information rather than clichés like “the gift that keeps on giving.”

Oh, and when you buy Traveling With Pain, you’re supporting this blog and making possible the publication of new Imperfect Traveler’s Guides.

Liz Hamill Lake Tahoe

Me and my sweetie at Lake Tahoe last winter--we did a not-on-the-actual-holiday holiday trip with his family

It’s two days before Thanksgiving and you may be reading this post frantically looking for tips and tricks to deal with psychotically busy airports, painfully congested highways, over excited children, grumpy spouses, difficult in-laws, and the pain that stressful holiday travel brings and exacerbates.

So what can you do to make it better? Lots of things, actually. Here are ten tips for making holiday travel as comfortable and pain-free as possible:

  • Hope for the best, but plan for the worst.
    While it’s nice to dream of perfect holidays where loved ones come together in harmony to celebrate the seasons, treating one another with love and compassion…dreams don’t always come true. Families often have trouble coping when a member has a long-term illness or disability, which creates a wretched situation for the disabled person. Know that this issue will come up, and plan ways to get around it.Roads, trains, buses, and airports get busy and chaotic during the holidays. The mechanics of travel–always a trial to people with disabilities of any kind–get even more difficult to navigate at this time of year.  Whatever precautions you usually take to make sure your trips is as pain-minimal as possible, pay special attention to them both before and during your holiday journeys.

    If you need ideas for how to make your trips easier and comfier, The Imperfect Traveler’s Guide to Traveling With Pain can help you out.

  • Set clear, firm boundaries with friends and family.
    Your fam will have an easier time accommodating you if they know what you need. So tell them what you need. Use small words.ASAP, preferably before you ever set foot on the road,  have a talk with any family or friends you’ve had tension or problems with at past holiday gatherings. Be kind, gentle, polite, and very very clear about your boundaries. If you need to sleep twelve hours every night and so can’t make it to church at 6 a.m. or to Midnight Mass, say so. If you need an afternoon nap once dinner is finished, say so. If you can’t stand in a kitchen stirring the gravy for half an hour, say so. Don’t be rude, just be crystal clear.
  • Enforce and live by the boundaries you set.
    Don’t be rude, just be firm. If you’ve said you need to be in bed by 10 p.m., go to bed at 10 p.m. without arguing with anybody. Just smile, say good night, and go. If you can’t stand up for long periods but you’ve been asked to help in the kitchen, ask for a stool. Or find a way to work sitting down. Or ask if you can participate in alternative tasks.I know how hard this can be (oh boy do I), but you’ll be amazed at how well it works.
  • Think about the weather.
    Check the weather reports for the area you’re traveling to, then pack and plan accordingly. Temperature variations tend to exacerbate chronic pain, which means that packing to deal with local conditions can make the difference between a great holiday adventure and a miserable disaster of a trip. Pack weather-appropriate clothes, shoes, and accessories (don’t forget hats and gloves and thick socks for cold climates).Weather conditions also wreak plenty of havoc on transit, be it ground or air. If a blizzard’s blowing into your intended destination, it’s much nicer to know that ahead of time so you’re tucked up in a motel by mid-afternoon rather than stuck on a highway that’s about to be closed sometime after dark has fallen.
  • Consider allergies, both food and environmental, and prepare for attacks.
    If you’re staying in a private home, ask if your host has any new pets that might trigger an allergy attack and bring medication to counter it. Drag an air purifier along if it will help. For folks who have sensitivities to detergents and scents, don’t assume that either a motel or a home will use scent-free or hypoallergenic detergents. The solution: BYO sheets, pillowcases, and towels.Bring backup food if you think you’ll have trouble finding meals that accommodate your allergies and sensitivities. Research grocery stores and restaurants and your destination and have a short list of likely eateries tucked into your bag.
  • Bring your comfort items with you.
    Winter and the holidays are not the time to pack super-light. Bring heating pads or hot packs with you if you need the warmth, cold packs to diminish swelling, and favorite pillows to promote comfort. Don’t forget earplugs and sleep masks, even/especially if you’re staying in a private home.
  • Stay someplace where you can really relax.
    If staying with family stresses you out, don’t do it. Find a hotel, a sublet, an Air B&B room for rent in the neighborhood that will provide you with a bedroom to which you can retreat to relax and take care of yourself.
  • Take extra time on the road.
    If you’re leaving a big metropolitan area to drive over the river and through the woods to Grandma’s house, keep in mind that lots of other people are doing the same thing. Check traffic reports and road conditions before you leave home, plan routes to avoid major traffic arteries if you can, and give yourself plenty of drive time.
  • Give yourself as much travel time as possible on all legs of an airplane journey.
    If you’re flying anytime this week, give yourself at least 30 extra minutes at the airport–I’d recommend an extra hour, to be honest. That means I’d get to the airport two hours in advance for a domestic flight, three hours in advance for international travel.
  • Stay home!
    I know it’s too late to change Thanksgiving plans now. But you’ve still got choices you may be able to make for the late December holidays. And the truth is, it’s easier physically, mentally, emotionally, and financially to stay home during the holidays. Even if you’ve got to host the gathering of family and friends in your own home, by bringing it to your house, you give yourself access to all your usual pain-management tools. You can sleep in your own bed, take a bath in your own tub, use your plug-in heating pad, see doctors if you need to, and retreat to your own personal space when you’re feeling uncomfortable.If you’ve got time off around the holidays and you want to see some sights or take in some culture, but the holiday travel experience will be too painful to be worth it, spend a few days playing tourist in your own town. Do things you don’t usually do. See a play in a local theater. Go to a nearby museum. Hike a trail in a county park.

Most of all–have a happy holiday season!

Kidd's Kids on Southwest Airlines

Southwest Airlines flies Kidd's Kids to Disney World, proving that if they want to, they can handle an entire plane full of disabled people and their attendants

Long known as a ‘cattle car’ airline that’s got cheap fares for flights in the American West, Southwest Airlines has recently acquired AirTran–one of the East’s major cheap airlines. I’ll be interested to see how this merger progresses and how it affects customer service on both airlines’ routes.

This review encompasses only old Southwest Airlines, sans AirTran. I will update this review sometime next year or the year after, when the changes have propagated across both airlines.

The Basics

Southwest Airlines is a classic  cattle car airline that flies within the continental United States. Up until recently, Southwest focused on the Western states, but they’ve purchased AirTran and so now have service all over the East as well.

Cattle car means no preassigned seats and few frills. There’s no First or Business Class on Southwest. Don’t expect blankets or pillows either. On the other hand, Southwest tends to run cheap, and they don’t pretend to be something they’re not. I like them for that.

Making Reservations and Online Services

Southwest doesn’t work with most of the major online multi-airline reservation services like Orbitz or Travelocity. To get a flight on Southwest you’ve got to go directly to their website or call them on the phone. And their home page is heavily overcrowded, which can make it tough to figure out exactly where to go for information.

I’m pretty impressed with Southwest’s Customers with Disabilities web pages. They’re a great deal more comprehensive than most airlines’ online disability info, including pages for people with peanut allergies, cognitive disabilities, medication needs, and other hidden disabilities that airlines usually forget about or ignore.

Another useful page is the Seniors page–Southwest offers discounts for passengers 65 and older.

But of course, there’s always more they could do. Such as create a means for people with low or no vision to use the web site, especially to make reservations and purchase tickets. I couldn’t find anything like that in the course of several searches. On the other hand, they do have a TTY number (800) 533-1305 for passengers with low hearing who’d like to make reservations over the phone. Speaking of which, the web site’s search function works okay, but isn’t great by any means.

Grade: B

Wheelchair Service 

Despite the no-frills Southwest boarding and seating experience, Southwest follows the law and provides wheelchair service for passengers who need it. You can ask for a wheelchair either at the curb or at the main check-in desk, and it takes about 15 minutes for it to show up. I usually arrive at the airport 90 minutes before my flight time when I fly Southwest, and that’s enough. (Except at LAX, but that’s a whole ‘nother post.)

I’ve had no problems with Southwest’s wheelchair services and behavior towards me as a PwD. But they have been having problems in this area in the past year. Southwest staffers have insulted and mistreated passengers in wheelchairs repeatedly. Frankly, they need to pull their act together when it comes to disabled passengers and create a coherent and consistent policy that works for their customers.

Grade: C-

Southwest’s Wacky Boarding Procedures

Thank the merciful heavens, Southwest does permit people with medical needs to pre-board. But you must must MUST tell them in advance that you need to pre-board and get yourself a pre-boarding card along with your boarding pass. Sometimes they’ll let you pre-board without it on your word that you need extra time. But sometimes they won’t. The only way to guarantee pre-boarding is to get that card.

Without the magic pre-board card, you’re doomed to be part of Southwest’s arcane and often-changing boarding procedure. On your boarding pass you get a letter and a number. The gate agent calls out a letter and a set of numbers. Then she calls out another letter and set of numbers. If you’re part of one of the letter-and-number groups, you go line up at a series of big weird-looking posts, finding the post that’s closest to your number. Then you’ve kind of got to ask all the other people around you what their number is, and shuffle into place in numerical order. Then the first group called boards. The second group called shuffles over to the other side of the posts and the gate agent calls the next group, who get to line up then wait.

Oh how I wish I were making this up.

Of course it may be different by the time you fly Southwest. They change it on a regular basis, just to keep semi-regular travelers on their toes apparently.

Grade: D

Southwest Airlines

One of Southwest's brightly painted airplanes

On the Plane

Once you’re on one of Southwest’s vast fleets of Boeing-737s, the in-flight experience feels about the same as any coach-class flight. In my opinion, it’s actually a little bit more comfortable than duct-tape class on a big-carrier wide-body jet flight.

Some flight attendants do stand-up comedy within the framework of the usual in-flight announcements.

Because most Southwest flights are short, they don’t do much in the way of food service. On most Southwest flights, you get a drink and a couple of miniature bags of snacks. I like the peanuts, but Southwest does recognize the issue of peanut allergies and will actually change their snack offerings for the whole plane if they know they’ve got a passenger on board who has peanut dust allergies. I think that’s a pretty cool deal, because it provides over-and-above accommodation for a customer with a hidden disability without unduly burdening the rest of the passengers. (Everyone still gets snack bags–they’re just not peanuts.)

Southwest is implementing wi-fi on their fleet. Right now they’re offering $5 access, but the price will no doubt increase after the implementation is finished. Frankly, I’m not likely to bother paying $5-$12 for an hour’s worth of Internet access–I’ll use free hot spots at the airports, thankyouverymuch.

The bathrooms on Southwest’s planes are no better and no worse than any other airline’s. I find it’s a little bit easier to get to a bathroom than on some other airlines: because there’s no First Class or Business Class on Southwest, the front-of-cabin bathrooms are available to all customers. I like that.

Grade: A-

After the Flight

My experience of Southwest is that they’re reasonably organized when it comes to meeting passengers with wheelchairs at the gate of an arriving flight. I’ve never had to sit and wait for a chair, even if I’m one of the first passengers off the plane. I know that this organization is a combination of airline and airport staff competencies.

On the other hand, I’ve had mixed experiences and my fair share of dashing from one baggage carousel to another to find my luggage, because Southwest sometimes seems to have trouble figuring out which flight’s luggage is going to what carousel. Again–I know that this isn’t all Southwest’s fault–the airports bear some responsibility as well.

Southwest has never yet lost any of my bags. (Insert the sound of me knocking wood.)

Beyond that, when I stupidly left my Kindle in the seat pocket of a plane in San Diego, they found it and got it back to me. I had to pay the FedEx freight for it. But I got it back! That was a fabulous surprise and made me super-happy. The Kindle had been a gift from my family, and I’m attached to it.

Any airline that can retrieve and return lost items that have street value gets a serious thumbs-up from me.

Grade: B+

The Bottom Line

TWP Grade: C+

Between the problems and inconsistencies Southwest has with disabled customers and the amazing boarding process that forces passengers to stand in line for no particularly good reason, I think that Southwest could do better for travelers with pain. But they’re good with luggage and the in-flight experience is as good or better than that of the fancier airlines.

Yes, I’ll keep flying them. They’re cheap and they’re convenient and they fly lots of places I want to go.

 

Photos (c) Southwest Airlines

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